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Missy
,
Kansas City
, United States
Diagnosed in
2000
Lupus is a very tough battle on a daily basis for me. There are days that I feel “great”, which my definition of great, and a healthy person’s definition very tremendously. (ha ha) But there are a lot of days that it takes everything I have just to drag myself out of bed. The pain, fatigue, and just the blah feeling daily is enough to wear anyone out. But I have learned to live life for each day that I have. And have come to try and live by the motto, “live each day as if it were your last.” I have been battling this illness for about 14 years now, but have only had the diagnosis for about 7 years. I have Systemic Lupus, with major organ involvement, and also 2 blood diseases. I have had to endure many surgeries due to issues that the doctors think may be caused from the lupus including a heart surgery, splenectomy, hysterectomy, and many more. I also spend a lot of time in the hospital, where the nurses are beginning to know me by name. Without the support of my family and friends I do not know where I would be today! I have also found a lot of support through online support groups, and the Kennison foundation. Sometimes one of the hardest things about lupus, is that us “lupies” don’t always look sick, but “don’t judge a book by its cover”, sometimes I look my best on my worst days! I may have Lupus, but I will not let it have ME!!!
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