| First Name |
Last Name |
City |
State |
Country |
Age |
Diagnosed In |
How lupus changed life |
|
Irish |
Irish |
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Liberia |
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Deborah |
Gaskin |
Kansas City |
Kansas |
United States |
42 |
1995 |
Rashes, surgeries extreme fatigue |
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Libby |
Libby |
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Multi-Universes and Re-Incarnation. Straight Talk. The Multi-Universe theory has always left me with a feeling of remorse and sadness, as though some major Physicists have come to a dead end , and don’t know where to turn next. The theory reminds me of human Re-incarnation, which is that only part of a wonderful and ancient religion I find hard to swallow, as though it spells out ” Well, you are very poor and outcaste in this life around, but if you are good, hardworking and honest, you can be born into a better life,…. next time. ” It is very possibly the reason why the poor have lived like they are living now, since ever,…. in India. It is the Indian excuse for,… its poverty . And now Mother Theresa has gone too. It is strange how religions and science mirror eachother in so many ways. Each tend to become stuck on their mataphors, bearing with them as though they were absolute truth. Luckily for scientists, most tend to fully understand there is no thing such as absolute truth. There is only a moveable feast. ” I have always thought it curious that,while most scientists claim to eshew religion, it actually dominates their thoughts more than it does the clergy. ” That was written by the famous physicist Fred Hoyle, and one can fully understand why he felt like that, if one reads on Science, the Universe, Quantum Physics and modern Biology. Scientists do, come face to face with the Awesome, as though God were leaving them small signposts of new understanding, goading them on. At last, I heard a voice upon the slope Cry to the summit, ” Is there any hope ? ” To which an answer peeled from that far land, But in a tongue no Man could understand . And on the glimmering summit afar withdrawn, God made himself the awefilled Rose of Dawn. Nobody knows who wrote that. It is more than two hundred years old. It could have been a scientist, a cleric, or a jailbird, any one of them locked in a dead end, or a Dark Night of the Soul.
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Will |
Will |
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Tennessee |
Macau |
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Multi-Universes and Re-Incarnation. Straight Talk. The Multi-Universe theory has always left me with a feeling of remorse and sadness, as though some major Physicists have come to a dead end , and don’t know where to turn next. The theory reminds me of human Re-incarnation, which is that only part of a wonderful and ancient religion I find hard to swallow, as though it spells out ” Well, you are very poor and outcaste in this life around, but if you are good, hardworking and honest, you can be born into a better life,…. next time. ” It is very possibly the reason why the poor have lived like they are living now, since ever,…. in India. It is the Indian excuse for,… its poverty . And now Mother Theresa has gone too. It is strange how religions and science mirror eachother in so many ways. Each tend to become stuck on their mataphors, bearing with them as though they were absolute truth. Luckily for scientists, most tend to fully understand there is no thing such as absolute truth. There is only a moveable feast. ” I have always thought it curious that,while most scientists claim to eshew religion, it actually dominates their thoughts more than it does the clergy. ” That was written by the famous physicist Fred Hoyle, and one can fully understand why he felt like that, if one reads on Science, the Universe, Quantum Physics and modern Biology. Scientists do, come face to face with the Awesome, as though God were leaving them small signposts of new understanding, goading them on. At last, I heard a voice upon the slope Cry to the summit, ” Is there any hope ? ” To which an answer peeled from that far land, But in a tongue no Man could understand . And on the glimmering summit afar withdrawn, God made himself the awefilled Rose of Dawn. Nobody knows who wrote that. It is more than two hundred years old. It could have been a scientist, a cleric, or a jailbird, any one of them locked in a dead end, or a Dark Night of the Soul.
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|
Ireland |
Ireland |
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Washington |
Burkina Faso |
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Wow now that you say it like that I’m even more waiting with excitment for my book to arrive, I so cant wait, you looked like you had so much fun with the naughty crafters that day, you go girl, hee, hee.And you studio looks so gorgeous, I would love to create in a room like that just beautiful! But I must ask you where do you get those letters from the one’s spelling out dream?, can’t get them anywhere here in Melbourne, Australia, and would love to buy some to spell out my girls names.HugsKirstie
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Rocky |
Rocky |
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Washington |
Yugoslavia |
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Wow now that you say it like that I’m even more waiting with excitment for my book to arrive, I so cant wait, you looked like you had so much fun with the naughty crafters that day, you go girl, hee, hee.And you studio looks so gorgeous, I would love to create in a room like that just beautiful! But I must ask you where do you get those letters from the one’s spelling out dream?, can’t get them anywhere here in Melbourne, Australia, and would love to buy some to spell out my girls names.HugsKirstie
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Hines |
Hines |
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Washington |
Yugoslavia |
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- Spencer these pictures are so amazing. We lived here when Hugo sat on top of this island as a cat 5 for hours and hours. Amber was seven and slept through most of the storm unaware of what was happening outside her grandparent’s great house. We lost our home to this storm. I find it ironic that almost 20 years later you found a resort that was left devastated by the same storm that took so much from us, but spared us this beautiful little girl who grew up to become this beautiful bride.
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Rosa |
Rosa |
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Kentucky |
Falkland Islands (Malvinas) |
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Actually, this may be just a little early for logging on Outer Island. The first record I’ve found of logging there is about six years later, in 1884. However, the government did make sure the keepers had a good supply of firewood: the light station boundaries were drawn large enough to encompass sufficient timber for the keepers’ use. Since these tracts were not subject to commercial logging, the lighthouse reservations now contain some of the oldest forest in the Apostles. (Think of those awesome pines on the trail to the Sand Island light.)
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Marylada |
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Actually, this may be just a little early for logging on Outer Island. The first record I’ve found of logging there is about six years later, in 1884. However, the government did make sure the keepers had a good supply of firewood: the light station boundaries were drawn large enough to encompass sufficient timber for the keepers’ use. Since these tracts were not subject to commercial logging, the lighthouse reservations now contain some of the oldest forest in the Apostles. (Think of those awesome pines on the trail to the Sand Island light.)
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Actually, this may be just a little early for logging on Outer Island. The first record I’ve found of logging there is about six years later, in 1884. However, the government did make sure the keepers had a good supply of firewood: the light station boundaries were drawn large enough to encompass sufficient timber for the keepers’ use. Since these tracts were not subject to commercial logging, the lighthouse reservations now contain some of the oldest forest in the Apostles. (Think of those awesome pines on the trail to the Sand Island light.)
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Mary |
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I’m a miladiadtary wife of four years, my husadband was maradried to his first wife for 13 years and she will get half of his retireadment and she was getadting 1200.00 a month for their two kids. But since we got maradried he has when back o court and got joint cusadtody of the kids. So that stoeppd the child supadport. I have since stop workading so that I can pick his two kids up and my baby girl up from school…oh did I meanadtion that I have 3 school to go before and after. They all could be going to the same school but his ex-wife dont want them to move and I can’t just move my kid to their school because of the school disadtrict. I have found out that he is still comadmuadniadcatading with his ex.…not just about the kids.…(hint). My queadsion is I’m thinkading about getadting a divorce but can I ask for alimony since I quit my job to help him with his 2a0kids |
|
Latonya |
Jones |
Chicago Heights |
Illinois |
United States |
45 |
2012 |
I realize that this is my opportunity to help others take charge of their lives no matter what health challenges they face! |
|
Sherry |
Williams |
Belton |
Missouri |
United States |
45 |
1999 |
I was diagnosed with Systemic Lupus Erythematous, SLE 13 years ago, shortly after the birth of my daughter. SLE is an autoimmune disease, which causes the body to attack its own tissue and organs. In 2009, Lupus attacked the left side of my brain which caused me to lose my job due to the loss of some of my cognitive skills, severe migraines, some memory loss, and neuropathy. This past year, I have suffered from Lupus and Fibromyalgia.
Lupus has changed my life by facing the silent disease with a positive outlook and continue to encourage others I come in contact with along the way.
Sherry Williams
sherry.x.williams@gmail.com |
|
Donna |
Cobbins |
Olathe |
Kansas |
United States |
53 |
1995 |
As a teenager I was always sick and my face covered with a rash. In those days they did not know what it was and it went un-diagnosis. My life changed the day after my wedding I became so ill from the effects of lupus. I had to change my life style but more importantly I learn to listen to my body. I am currently in remission and have been for 4 years. My faith in God, my family and friend have help me over come this challenge. There is a cure and we will find it soon! |
|
LeAndrea |
Mack |
Kansas City |
Missouri |
United States |
29 |
5 |
Never thought I would ever get better after needing help caring for NOT ONLY my daughter but myself as well. My mother stepped into help but soon after my diagnosis, she found that her joint aches & fatigue came from Lupus too. She was diagnosed 2009. |
|
Maria |
Kennison |
Richmond |
Texas |
United States |
46 |
2011 |
Not knowing and getting the right Doctors and treatment once we found out was the biggest change. |
|
S |
D |
We |
Alberta |
Cocos (Keeling) Islands |
45 |
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Kayla |
|
Kansas City |
Missouri |
United States |
26 |
2010 |
I was diagnosed with Lupus in May 2010. It has changed my life a whole lot. I can no longer care for myself or my son. I am always n pain, but I know that god is going to see me thru this, in my tough times. |
|
Kayla |
Brown |
Kansas City |
Missouri |
United States |
26 |
2010 |
Always n pain, worried about work and medical expensies |
|
Belinda |
Artis |
Kansas City |
Missouri |
United States |
40 |
5 |
I lost everything. My health, personal belongings (like my car and house), my children - due to a very ignorant ex-spouse, and I almost lost my mind! It had not been for the Lord on my side, I am not sure I would have made it this far. Despite the pain, the tiredness, the stiff muscles and joints, the frozen fingers and toes, the blue ears and nose, God is with me wherever I go! |
|
Belinda |
Artis |
Kansas City |
Missouri |
United States |
40 |
5 |
I lost everything. My health, personal belongings (like my car and house), my children - due to a very ignorant ex-spouse, and I almost lost my mind! It had not been for the Lord on my side, I am not sure I would have made it this far. Despite the pain, the tiredness, the stiff muscles and joints, the frozen fingers and toes, the blue ears and nose, God is with me wherever I go! |
|
Deborah |
Gaskin-Eisenhower |
Kansas City |
Kansas |
United States |
40 |
1995 |
Good and bad it allowed me to appreciate life and the people in my life more as my Mother died from it when I was 12. I realize that lupus has no real boundaries. I have been blessed in that I am able to work raise my 2 children and I am now a grandmother. The flip side is the aches, the rashes, the meds, the running from the sun and running from the cold. |
|
Kendra |
Isola |
Omaha |
Nebraska |
United States |
33 |
2004 |
Lupus changed everything about my life but I refuse to let it ruin my life. I have dedicated my life to fighting Lupus and supporting other Lupus Fighters. |
|
Melissa |
Stanley |
Gardner |
Kansas |
United States |
28 |
2010 |
Four months ago after an increasing amount of hair loss, and battling a severe rash on my hands face and neck, i sought medical attention. Now, after being diagnosed with Lupus, I am currently starting the medication, and learning how to manage the disease. It has been a rough summer, and I know things sometimes get worse before they get better, but I am happy to be moving forward in the right direction.
|
|
Melissa |
Stanley |
Gardners |
Kansas |
United States |
28 |
2010 |
Four months ago after an increasing amount of hair loss, and battling a severe rash on my hands face and neck, i sought medical attention. Now, after being diagnosed with Lupus, I am currently starting the medication, and learning how to manage the disease. It has been a rough summer, and I know things sometimes get worse before they get better, but I am happy to be moving forward in the right direction. |
|
ELLA |
MCAFEE |
OLATHE |
Kansas |
United States |
50 |
2008 |
It took them 2yrs to finally diagnose me with Lupus after getting sick in 2005. It has changed my life forever, but I am thankful for my faith in God that keeps me going. The things that I took for granted like waking up and just combing my hair or walking up and down stairs now I have to think twice about the simple things in life. But I pray daily and have learned to live with the pain and know that God is able to heal me and He will heal me. I will keep praying, pressing and praising Him until my divine healing comes. |
|
Veronica |
Smith |
Rialto |
California |
United States |
34 |
1998 |
Live Laugh and Love |
|
LaShelia |
McMillan |
Pelham |
Georgia |
United States |
25 |
2004 |
Lupus has changed my life tremendously. I have lost my hair along with my ability to walk. I am now in a wheelchair due to being on the steroids that is used to treat Lupus. I have also had my kidneys shutdown and I have had a blood clot. I will never be the same person I was before but in some ways I am a better person. I want people to be educated about this disease that people in my community know so little about. |
|
Sydonnie |
Robinson |
Mount Vernon |
New York |
United States |
37 |
8 |
Yes, tremendously. I was never a sick person, until I was diagnois with Lupus. Now I have to constantly take medications to make me feel better. if I forget to take my meds for a day, I am in severe pain. Always feeling tired, lack of sleep, constant migrane. I am greatful to have very supportive families and friends |
|
Diamond |
McCray |
Nesmith |
Saskatchewan |
United States |
19 |
1 |
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|
Rachel |
West |
South Lake Tahoe |
California |
United States |
30 |
2004 |
Being a Mother to a 7 year old can make daily, trivial things a major undertaking when living with Lupus. I have a lot of support, but like so many other stories, you just dont want to tell anyone. People look at you like you are either made of glass or nothing could be wrong. You cant see Lupus everyday, but feeling like you are sick and tired....makes you sick and tired. |
|
Maria |
Johannesen |
Clearwater |
Florida |
United States |
35 |
2000 |
It made me realize how important it was to take a moment to see the beauty around me. I started a non profit organization in November of 2008 named, Loonies4Lupus. I believe in positivity, laughter and mind over matter dealing with my Lupus. Since 2000 my Lupus has progressed to my lungs causing constant battles with Pluerisy & Pneumonia scarring my lungs. I have come to terms that though complications may get the best of me. I still have the ability to laugh and enjoy my life for what it is by my motto, "I control Lupus, Lupus does not control me." I plan on spreading that motto through awareness with Loonies4Lupus providing resources & support to others dealing with our disease. |
|
Jamie |
Francis |
St. Petersburg |
Florida |
United States |
28 |
2002 |
too many ways to list. FYI, the email template is not big enough for my email ... smarter2invest@yahoo.com |
|
Steven |
Helms |
Narshville |
North Carolina |
United States |
45 |
2008 |
No more sunshine and worried about my job |
|
Lisa |
Doston |
Grandview |
Missouri |
United States |
|
95 |
Lupus has changed my life very much as to how I really listen to my body and how thankfull I am to be in remission at this time since 2006 after being treated with Chemothrapy for Cancer.
which we hope killed off some of my Lupus Cells. My daughter's are becoming more aware know that they are older and I can stay out in the sun longer also due to proper nutrition and Medications. |
|
Jennifer |
Witte |
Kansas city |
Missouri |
United States |
23 |
2008 |
I was just diagnosed with Lupus last week (April 3rd). I am literally taking my first step to learn about this disease and take control of it so I can live a better life. I've had symptoms since I was about 5 years old and it's taken this long to get a diagnosis. I would be lying if I said I wasn't scared because this was the last thing I expected to be wrong with me and it's changed my entire perspective on health. I don't really know how to get connected with others that have this disease and I plan to find some support groups so I can learn from others who know more than I do. If anyone has any information, I would appreciate it very much. I don't know how else to contact people with Lupus. My previous attempts to be contacted by the Lupus Foundation haven't been successful so far. jennirath1@yahoo.com
Thanks-Jennifer |
|
Lena |
Zeller |
Higginsville |
Missouri |
United States |
39 |
1998 |
I suffered from this disease along time before my diagnosis. I have had stage 4 kidney failurewhich was treated with Cytoxan and steroids. I was very lucky and have pretty normal kidney function now. I had a condition where Ilost all my muscle control and had to relearn how to swallow and walk. I have had a DVT in my leg. I have Ulcerative Colitis which is another auto-immune disease. I am diabetic from being on steroids non-stop since 2000. Hospitalizations are a normal thing for me. I have anxiety and depression. I have had a few good days but mostley my days are filled with pain. I have a beautiful 17 year old daughter Brianna, who is my angel. She had to grow up really fast. Bri has given up so much because of my illness. We can never go on vacation because Sunlight is a definite trigger for me. She doesn't complain(well not too much). She has been diagnosed with Chronic Fatigue Syndrome and has a positve ANA. The doctors says she is most likely to have an auto-immune disease too. I pray everyday that will not be true. I have another family member who just passed due to heart complications of Lupus and another family member who has been living with Lupus for 25 years. The pain and suffering is not just mine. It is a burden for my family. I have been on disability since 2000,so both of my parents who are of retirement age are both working because of all my bills and medications to treat my diseases. I hav lots of people who care aboutme. I thank the ALR and quickstart kennison for all they do to find a cure for Lupus! |
|
Missy |
|
Kansas City |
Missouri |
United States |
|
2000 |
Lupus is a very tough battle on a daily basis for me. There are days that I feel “great”, which my definition of great, and a healthy person’s definition very tremendously. (ha ha) But there are a lot of days that it takes everything I have just to drag myself out of bed. The pain, fatigue, and just the blah feeling daily is enough to wear anyone out. But I have learned to live life for each day that I have. And have come to try and live by the motto, “live each day as if it were your last.” I have been battling this illness for about 14 years now, but have only had the diagnosis for about 7 years. I have Systemic Lupus, with major organ involvement, and also 2 blood diseases. I have had to endure many surgeries due to issues that the doctors think may be caused from the lupus including a heart surgery, splenectomy, hysterectomy, and many more. I also spend a lot of time in the hospital, where the nurses are beginning to know me by name. Without the support of my family and friends I do not know where I would be today! I have also found a lot of support through online support groups, and the Kennison foundation. Sometimes one of the hardest things about lupus, is that us “lupies” don’t always look sick, but “don’t judge a book by its cover”, sometimes I look my best on my worst days! I may have Lupus, but I will not let it have ME!!! |
|
Parks |
LaKenya |
Atlanta |
Georgia |
United States |
31 |
2000 |
Lupus has certainly changed my life in ways unimaginable. I struggle daily with pain, take all different kinds of medication, have undergone a blood transusions as well as two rounds of chemotherapy, etc. I have a 10 year old daughter who sufffers because I suffer. It is very depressing. |
|
Johnua |
|
Jacksonville |
Florida |
United States |
17 |
2006 |
Lupus has been a very difficult disease. With many visits to the hospital over the year, I have learned to just deal with it. There are so many times when i want to question God and ask him why me, but i know why he picked me. He picked me because I'm special in his eyes. I love the support I get from my family and friends and even from people that I dont know. I have learned to live with Lupus for a year now. I have had my bad days when i just felt like nothing. And some days I feel like how I use to feel a year ago before being diagnosed. To all of you who have Lupus, keep your head up! And don't let Lupus stop you from doing anything! |
|
Devon |
Edwards |
Milford |
Kansas |
United States |
34 |
2006 |
Honestly, where do I begin? My name is Devon J. Edwards, Sr., a Chicago native currently living in Milford, KS. I was sent here by way of the U.S. Army in 1995. Thanks to the military I have made several tours overseas and to different parts of the country. First, the Navy sent me places like Cuba, St. Thomas, Puerto Rico, and Panama, just to name a few, from 1991-1993 until I joined the Army in 1994. The Army on the other hand sent me places like Korea and again to Cuba. It wasn’t until the attack on the WTC that our deployments had range and depth added to them. By this time I am serving in the Kansas Army National Guard. (HOORAH) We were called back to active duty to perform a peacekeeping mission in Kosovo. I began to experience some minor health issues at that time. Things such as knee pain which I thought to be normal especially after having surgery on both knees and then chest pains, which of course the Army said was anxiety. After returning from Kosovo in August 2005 I began to experience some minor back pains but grew to be more than a minor backache. I visited my family physician and was prescribed pain medication and muscle relaxers. Not satisfied, I went for a second opinion and then a third. I finally came across a doctor who had heard of my symptoms before-extreme fatigue, severe joint pain, swelling of joints (mainly knees and ankles). This particular doctor suggested that I see a specialist, a rheumatologist to be exact and I did. After a few tests he concluded that I had Systemic Lupus Erythematosus (SLE). Not only that but also Lupus Nephritis. The treatment plan that he and the nephrologists came up with was a combination of Cytoxan and Prednisone. Seven treatments later it was a complete failure. Month after month I spent in the hospital with severe symptoms, no relief, blood transfusion, more disappointments and then a new attack on my body, pitting edema. I went from a solid 225 lbs to 300 lbs in a matter of days with nothing but fluid retention in my body. It was so bad that my legs began to leak fluid and the tops of my feet burst open leaking fluid and blood. My heels were cracked open to the point that I could not walk or even put on a pair of socks. I even had a central line embedded in my neck. My situation had me taking over 30 prescribed pills daily. Both doctors came to visit me in my hospital room. I was told there was nothing else that they could do for me. One doctor suggested that I move to a larger city where I could be provided for better. I was then transferred to KU Medical Center in KCMO. My new doctor suggested I try an experimental drug called Rituximab. Even after receiving all the negative side effects such as death, cancer and ulcers I decided to go for it! I must say, it seems to be working. If we weren’t going through enough already with my own personal battle with SLE and the added stress of being medically discharged from the military and forced to medically retire, my beautiful wife has now been diagnosed with MS. Our two children are learning hard lessons about life right now. They have shown themselves to be very strong and supportive. We are facing this battle as a family. Our faith and trust in God and the neverending support of our church, family and friends, helps us continue on. |
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Beckie |
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Kansas City |
Missouri |
United States |
30 |
2000 |
I was diagnosed with Systemic Lupus Erythematosus in February of 2000. I have what are called Lupus anticoagulants. These are antibodies that work against phospholipids (a group of substances in cell membranes), which inhibit blood clotting in a test tube, but may be associated with a higher risk of clotting in people who have them in their blood. Just 1/3 of lupus patients have this, unfortunately, I am one of them.
Living with Lupus is a daily struggle. Most people think that those with Lupus may not look sick, but we are. It is a daily feeling of having the flu. Feeling like I have the flu is normal to me. Just making it through the day with only one ailment is a good day for me. It is hard to go through each day feeling what I feel and not wanting to tell anyone. Not wanting to tell anyone because I just want to avoid all the questions. I don't want people to think ...there is always something wrong with her. The truth is, they are right. There IS always something wrong with me, but I have learned to live with it. It has become my normalcy. It not only causes physical pain, but emotional pain, as well. It is frustrating to feel what I feel and have no one understand. The stress of being a burden on your friends and family. I will not even mention the endless medical bills!
I could write an entire book about my 6 year struggle with Lupus. When I was first diagnosed, I was told that the odds used to be 50-50, meaning that you would die within 5 years of diagnosis. Today there are more tests, better treatments, and a larger percent chance that Lupus will not shorten my life-span! I have made it this far and I will continue!! I may feel like crap and my bad days may be pretty bad, but I will not succumb to this. Instead, I have become a Lupus advocate and so can you! |
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Caryo |
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Overland Park |
Kansas |
United States |
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1982 |
It takes a very strong person to be positive when living with a disease that at present has no cure and the only medications available to suppress the disease are extremely destructive to the body.
I fight through severe pain and various issues daily. Lupus patients need a compassionate and strong support system to deal with this disease. I am thankful that my husband, Lee, is so supportive , understanding, and a strong advocate to find a cure for this disease.
The Alliance for Lupus Research is working extremely hard to provide realistic hope for better treatments and an eventual cure. QuickStart has helped in providing ongoing events to benefit the cause. |
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Eryn |
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Overland Park |
Kansas |
United States |
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2003 |
Lupus is an amazing illness that you learn to live with, side by side.
I was diagnosed in 2003 at the age of 25 and everyday I am learning my limitations. I can't move around as well as I use to or do the daily routine with ease as I once did. During my pregnancy I had numerous complications, leading up to a horrible delivery that was 9 weeks early. Two years later, I had a stroke which still causes many problems. Most days I endure the more common annoying problems... joints that stick and ache, fevers that drain you, pounding headaches, and extreme fatigue. I have always been very independent and it has been difficult to rely on others. But, I must. I have a wonderful 7 year daughter who helps where she can and I am thankful to have the support of those who love me.
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Danielle |
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Kansas City |
Kansas |
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2000 |
I was diagnosed with lupus when I was 15 years old. Lupus has changed my life in many ways. It has been difficult to be so young and deal with this disease, but God knew that I would be able to handle it. It has not always been easy for me or my family, but we have gotten through it and we keep on fighting. Overall lupus has made me a better person in the long run - I appreciate life more.
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Autumn |
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Kansas City |
Kansas |
United States |
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2005 |
My experience with Lupus has been shadowed with God's blessings. He has given me the strength to move forward in the area of the unknown. My family and friends have made my coping a lot easier. God has blessed me with understanding friends and family. Through close monitoring of medications, I am now in remission, and have been for almost two years. God keeps blessing me with amazing people to help me through this journey, knowing that He will never give me more than I can handle.
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Shimika Kennison |
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Kansas City |
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United States |
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2003 |
Being a young mother of 2 active boys, managing lupus has become a significant part of my life. I am currently in remission but I have had several medical setbacks since being diagnosed. Until a cure is found, I know that I must take good care of myself, follow the advise of my doctors, eat properly, and get plenty of rest! Through my faith in Jesus Christ, the strong support of family and friends, and the ongoing research of the Alliance for Lupus Research, I know I will get through this. |
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